water-based paint adventures

Jun. 28th, 2017 09:27 pm
syntheid: [Steven Universe] Lapis's cracked gem (not beyond repair)
[personal profile] syntheid
I've been messing around with gouache and watercolor, trying to figure out how to use them, basically. So just been doing studies though I ... cannot find the original sources for the refs I used. Anyway. Actually kinda liked how these two turned out so. Enjoy I guess?


bridge in the forest, gouache

portrait of 'nuwa', watercolor

(no subject)

Jun. 28th, 2017 10:22 pm
some_stars: (Default)
[personal profile] some_stars
So a little over a year ago I made a Dark Angel vid solely for my own amusement, and it turned out pretty good. There was one clip--an important clip, probably the most important clip--that I just could not get to come out in anything but the most abysmal, muddy quality, no matter what I tried, so I didn't post it, resolving to fix this issue somehow, someday. I now accept that that's never going to happen, so here's the vid, bad clip and all. But the rest of it is pretty good! (Well, the overall quality isn't great because the show is from 2001. But you know. Pretty good.)

Title: Stuck to You
Artist: Nikka Costa
Fandom: Dark Angel
Size: 55 MB
Content notes/warnings: No standard warnings apply. If you need to know about anything else, just ask.
Summary: Max and Alec: best friends forever.

Download available on request!

Also on AO3

streaming and lyrics )
nanslice: ([ffviii] stare down)
[personal profile] nanslice
Title: A Moment of Weakness
Fandom - Pairing: Final Fantasy VIII - Irvine/Zell
Length: 1079 words
Summary: “Oh wow, Zell, look!” Selphie said, bouncing in her seat and tugging on Zell’s arm. “A festival! They’re having a festival! I can see it from here!”
Content Notes: Romance, banter
Author Notes: Written for the 'outdoor music festival' square of my [community profile] fffc card.

A Moment of Weakness )

Now: summer

Jun. 29th, 2017 12:33 am
schneefink: (Feldgatter)
[personal profile] schneefink
Instead of one of the many posts that I keep planning to make and then don't find the time for, have a sample of things currently occupying my brain.

- The latest season of Natsume Yuujinchou just ended and it was great and I love this anime so much.
- The only "TV" show I'm currently watching is Critical Role, the new episodes and also the early ones that I've been catching up on. The early ones are fun, the new ones are very exciting. 102: [spoiler spoiler]!!
- I have started calling politicians about stuff. This makes me anxious (but so does politics as a whole, so) and is frustrating but at least I'm trying to do something? A tiny little bit? There was a demo last weekend but I missed it because of terrible time management.
(And that is only local politics, got to start somewhere. International? Holy shit.)
- Our newest flatmate is already moving out again :( She's dropping out of her study program and moving back to Germany. Definitely the right decision for her, but sad for me and DD, we really liked her. Also she baked well.
- Last weekend was my mom's 50th birthday party and LB and I wrote a poem. Writing poems is difficult but kinda fun, and it was well received.
- There are so many recs I want to post. This would probably be easier if I would post them one or two at a time, but from somewhere in SGA fandom I got the idea that rec sets have to be a minimum of three recs, which is annoying. (Maybe I should post a poll asking you guys which recs you would be most interested in. Also, ticky boxes.)
- Other things I watched/read that I haven't yet posted about include the Last Herald of Valdemar series, Zootopia, Disney's Hercules, Lilo&Stitch; and of course the latest few D&D sessions (we'll go to the world disc's underside to blow up the evil gods' vaults next session, also I now have an undead minion.)
- Flower went to Vegas, and then weird trades happened and people got very pissed off about it, and to sum up sports fandom is kind of silly.
- I'm not always happy with how many things I manage to do, but despite the heat I've gone running again twice in the past week (at midnight), at least that's good. I've also gone swimming a few times, every time I visit my parents, which is always great.
- I'm barely writing anything right now and not happy with it, so I signed up for h/c bingo in the hopes of finding some inspiration. I have some ideas, now I just need to find the motivation to actually sit down and write them.
- Overall I feel mostly good :)

Extended versions of some of these probably to come later. Maybe. (Better tell me if you're interested in anything in particular.)
Ten minutes after I post this I will think of five things I forgot to add, but hopefully I will have already gone to bed then so I won't get little sleep again. Right now I feel like rambling about anything and everything, definitely time for sleep.
nanslice: ([sherlock] and here we are)
[personal profile] nanslice
Title: Twilight
Fandom - Pairing: Law and Order: SVU - Barba/Carisi
Length: 898 words
Summary: Barba’s voice was sharp when he asked, “Are you planning on transferring?”
Content Notes: Romance, banter, secret relationship.
Author Notes: Written for the 'moodlight shadows' square of my [community profile] fffc card.

Twilight )
[syndicated profile] thewildhunt_feed

Posted by Cara Schulz

MINNEAPOLIS, Minn – Last Saturday the Global Water Dance was held in more than 90 locations around the world. In Minneapolis, local Witch Rae Eden Frank joined other artists and environmentalists to raise awareness about global and local water issues.​

To draw attention to what the Global Water Dance says is a water crisis, performers come together every other year to perform a four part performance. The first two parts are choreographed to showcase the importance of water as seen by the local community. The third section has performers from around he world performing the same movements while the fourth part has the audience joining the performers in simple movements.

In Minneapolis, the event was held at the Stone Arch Bridge and included the audience participating in holding a long stretch of blue fabric spanning the bridge to represent the Mississippi River.

Local choreographers Lori Mercil and Rae Eden Frank were joined by Global Water Dances founder, Marylee Hardenbergh.

Ms. Frank, a Reclaiming Witch, says this event fits in closely with her religious ethics.

“My spiritual practices are tied into honoring the earth’s natural cycles and paying attention to the moments.  There is so much beauty in nature and so much beauty.”

She says her advocation for environmental justice and equity have encouraged her participation in the Global Water Dance for the past five years, “I believe in access to clean drinking water as a fundamental unquestionable human right.”

The Global Water Dance first launched in 2011 in response to UN Resolution 64/292, The Right to Water and Sanitation. The United Nations said unsafe water kills more people every year than all forms of violence and about 1.8 billion people lack access to safe drinking water.

The Minneapolis group says 40% of the state’s 10,000 lakes and 90,000 miles of rivers are are unsafe to fish from or swim in. They claim this leads to negative impacts on the quality of life Minnesotans enjoy.

They were also careful to note that the location where they performed is a sacred site, stolen from the native Dakota people.

Frank says she uses dance as a form of moving prayer, combined with intention, to shift the energy surrounding the waterways and our relationship to them. “This is the power of the witch. The art of changing consciousness at will,” says Frank.

[Courtesy Photo]

Writer Workshop June 28th, 2017

Jun. 28th, 2017 04:23 pm
[syndicated profile] slacktiverse_feed

Posted by christhecynic

(Posted by chris the cynic)

[Anyone who would feel more comfortable talking about non-writing creative work in a thread that doesn’t have “Writer” in the name, you may find this month’s creative corner thread useful.]

Those of you who also frequent Ana Mardoll’s Ramblings will find this somewhat familiar.  Here, as there, it was requested that there be a regular post to talk about writing projects (and other artwork-creation). Thus this post exists.

Pencil by Elisa Xyz

What are you working on? How are you feeling about it? What thoughts and/or snippets would you like to share? How does your activism work into your art? What tropes are you hoping to employ and/or avoid? Are there any questions you’d like to ask or frustrations you’d like to vent?  Writing workshop below!


doo doo doo do doooooooooooooooooo

Jun. 28th, 2017 11:24 am
quigonejinn: (Default)
[personal profile] quigonejinn
Spotify likes to do auto-generated playlists -- like, it'll pull tracks that you have on various playlists and group them into pop themed playlists and rock-themed playlists and classic music or whatever. But they've recently started doing ones based on tracks you've listend to a lot at various times, and uh.

GUESS WHAT I LISTENED TO THE PACIFIC RIM THEME A LOT FOUR SUMMERS AGO GUESS WHAT IT STILL MAKES ME FEEL LIKE I COULD STAB A KAIJU IN THE FACE WITH A 50 FOOT CHAIN SWORD GUESS WHAT I STILL LOVE MAKO GUESS WHAT

...

Recently worked my way through all three books of Diana Wynne John's "Howl's Moving Castle" series, and they're as charming as advertised -- magic cats! Sisterhood! Babies! Domestic housekeeping being valued and not denigrated! The intro to the first book is one of the most effective openings that I've ever read in the genre of updated fairytales, because it's clean and tight and shows such awareness of the form, while also making smart, focused tweaks.

On the other hand, who gives a fuck about Howl? As usual, I'm apparently in the minority on this, because there's a bit at the end of one of the books where Jones mentions how many girls show up at readings with crushes on Howl, whereas I'm just ????????????????????????? WHAT IS THERE TO LIKE ????????????? SOPHIE WHAT DO U SEE IN HIM??????????????

I told Mr. Rhod this, along with the bit from Wikipedia about Howl being an interpretation of the Byronic hero ideal, and he started to laugh at how I was surprised at not liking Howl. Because it's completely true -- Howl, and his flashy, dramatic ways and inability to commit and unwillingness to take responsibility are things that actively repel me. I'm too old for that shit, and like, there's a bit in Howl's Moving Castle about him throwing a temper tantrum in the course of days-long sulk, and causing the whole house to be covered in green goo that Sophie has to work herself to the bone cleaning up, right?

Noooooooooooooooooooooooooooooooooooooooooooooope.
sovay: (Psholtii: in a bad mood)
[personal profile] sovay
I have had an absolutely rotten day, in which I think I can safely say that the best thing that happened to me was getting rated a "Yiddish flirting expert" by YIVO in an online quiz. (I mean, I don't know about that, but I can certainly read Yiddish well enough to translate those pick-up lines. I'd love to know where they came from.) I am also entertained to learn that the Massachusetts Historical Society has been tracking John Quincy Adams across the sea thanks to his daily habit of recording latitude and longitude on transatlantic voyages. Other than that, I wish it had been logistically possible for me to spend the day in bed.

[edit] After watching Vincente Minnelli's The Band Wagon (1953), I actually feel better. I love when that works. The "Girl Hunt Ballet" is even funnier if you have spent the last year and change immersed in pulp fiction and still bounced off Mickey Spillane.

(no subject)

Jun. 27th, 2017 08:03 pm
nanslice: (Default)
[personal profile] nanslice
I want to write some totally id-y fiction full of supernatural romance and power imbalances and then those power imbalances being flipped. Which means maybe I should do Camp NaNo? Is anyone planning on participating in Camp NoNo this July? Is this a terrible idea? Someone either enable or talk sense into me lmao.

EDIT: Altho I can also just write AUs instead of working on original fiction, even though gosh I really need to start working on original fiction again, like dang, me. :\a
[syndicated profile] thewildhunt_feed

Posted by Terence P Ward

TWH –Pagan and polytheist religions, or at least the modern versions of them, have only been publicly practicing for a few decades at best. Therefore, a relatively small number of practitioners have entered into an elderhood which requires residence at a nursing home or other long-term-care facility. Those numbers are only likely to grow in the coming years.

[Pixabay.]

Timothy Anderson (Timotheos) is a program director for an assisted living facility, and while he isn’t aware of any Pagans or polytheists at his job, the issue is close to his heart. Anderson recently made a presentation on Paganism at a conference of the National Certification Council for Activity Professionals, to help his peers recognize people who practice one of these minority religions.

“By law, they must be allowed to practice their faith,” he explained, but ignorance of what that entails can be an impediment. Indeed, staff members must even assist residents unable to practice without help, so long as that doesn’t interfere with the rights of others. That might mean allowing a resident to maintain an altar in their room, or perhaps helping that resident lift an athame to salute the directions.

Gloria Cummings (Vesta Brightstar) spent the last 25 years of her nursing career in long-term-care facilities, before retiring in 2011. “As a community, I don’t think we understand how the environment is,” she said.

“The spiritual supports available are overwhelmingly Christian.” Lacking a specifically Pagan nursing home, she expects that the growing number of Pagan residents will have to advocate for themselves more than their monotheist neighbors.

“Paganism is so very young,” Cummins notes, that that there are far fewer practitioners past their 70s. “We really don’t like to think about aging.”

Like many life activities, religious ones to be curtailed by other rules governing such facilities, which is why Anderson recommends giving thought to what’s most important ahead of time. “Make a list of the bare minimum needed to practice, and tell them,” he said. “It’s like going back to college, with no candles or incense allowed. People must be prepared to adapt.”

When one is making a list about what’s critical to one’s practice, it is also appropriate to consider what advance directives might be desired when it comes to extraordinary life-saving measures, end-of-life care, and disposition of one’s sacred items and estate. Anderson sees all these questions as part of the systems to put into place to guard against a time when making decisions itself is impossible.

He notes that any of these documents “can be changed at any time.”

Cummins didn’t recall ever encountering a patient who she knew was Pagan or polytheist, and she has two competing theories as to why. On one hand, many of her contemporary co-religionists may simply choose to identify as “spiritual, not religious,” which she has herself claimed on forms to avoid a hassle.

On the other, many elders she’s known have simply passed on when the time comes, without the need for extensive care of this type. “That’s what I want to do,” she admitted. “With a lot of Pagans, when it’s time to check out, we check out.”

Not everyone is public about their religious practices, and many people are not even out to their children about what they believe and do. In the long run, becoming more open about that information may become very important when it comes to geriatric and end-of-life care. “If family dynamics are an issue be clear about things like not allowing family members to pray over you,” Anderson said. “The tough reality is that we are not going to be independent for the rest of our lives,” and may need assistance not only practicing, but advocating as well.

[Pixabay.]

Cummins feels that coming to terms with being open about one’s religion can make a big difference, especially for those who belong to spiritual communities. “Perhaps their high priestess can visit,” she said, or a resident can take advantage of the occasional overnight stays out of the facility to stop into a festival or observe an important rite. “A lot of people don’t realize that’s an option, without losing their benefits,” she said. When it comes to advocating for religious expression, “It’s important to weigh the benefits of being public.”

Questions Anderson suggests asking include, “How would my practice change if I couldn’t walk, or couldn’t see? What if I am not allowed to have a knife? What religious care would I need if I were to suffer from Alzheimer’s disease? What can we not live without?” When it comes to practicing one’s religion, “What services are we looking to get?

As for Alzheimer’s and other forms of dementia, Cummins didn’t recall any patient on those wards “who talked about their goddess, or anything like that.” It can be tricky to recognize Pagans who were private about their faith prior to being stricken, as they frequently respond to music they were familiar with in youth, which may include Christian hymns. “It may be that the elders who are able to set up altars in their rooms are cognitively intact, and don’t need our help.”

“They may not know what we do,” Anderson explained. “Be blunt. Ask, ‘Can I do that here, or do I need to look elsewhere?’ It will save the rigamarole if, for example, they have a ‘no altars’ rule.” He said it’s also important to remember that private rooms are a rarity in all types of elder-care facilities, and that other accommodations might be necessary for even solitary observances. For groups visiting to practice together, it might even be necessary to rent a room. Again, it’s important to confirm the rules around what’s acceptable in such a space, such as the presence of open flame.

Healing and other magical work is also something which should, if at all possible, be discussed in advance of admission to a facility. Practices such as entering altered states and the usage of herbs should be hit upon, and it’s possible that a waiver may need to be signed whether or not the staff doctor approves them from a medical standpoint.

Cummins and her husband are in their 70s, and should she have to move into a long-term-care facility she has every intention of availing herself of all healing modalities, both medical and spiritual, that she can. However, home care is the option that they would prefer.

It’s not uncommon for Pagans or polytheists to be in non-traditional relationships, either. “You should explain those dynamics before you walk in the door,” said Anderson, again to avoid expending effort justifying them after the fact.

Staff members at facilities should also be asked about spiritual matters, in Anderson’s view. “Do they have a spiritual care coordinator? A chaplain? What does person do?” He estimates that in perhaps 90% of facilities, the activities director is given oversight of spiritual nurture among their many other duties, rather than hiring either of those specialists instead. It’s not inappropriate to find out if the person in charge of spiritual activities understand the needs of a polytheist or Pagan. “Can a non-monotheist have option here?” is what he suggests finding out.

Preparing for this silver tsunami in Paganism should not solely fall on those who are themselves aging, either. “The Pagan community needs to be available to people who can’t get to circles and services,” Anderson said.

Pagans and polytheists should also be working on outreach now, Anderson said, before too many more community members have need of such services. “We are a minority,” he said, and “we need to have this conversation from a place of education.” That should include an explanation that there are many different Pagan faiths, else even those who have a passing familiarity may make incorrect assumptions. “If you’re not Wiccan, say so,” he said.

Given the number of people whose practice is entirely solitary, Anderson is of the opinion that “all priests need to be ready for phone calls from strangers,” even those who practice an entirely different Pagan faith. While members of the community have made inroads into chaplaincy, finding a Pagan one in a nursing home is still nigh unto impossible. An alternative he’d like to see is a resource list of chaplains willing and able to visit via Skype or another video platform.

An alternative to living in a facility is aging in place with some sort of home care provided, such as Cummins desires for herself. Even then, Anderson cautions, it’s important to ask questions before retaining a service. “Does the system support the right to practice?” he asked. “Will the aides assist in getting to the home altar or reading prayers? I’ve heard horror stories of conversion by home-care professionals, which is illegal and wrong.” That’s a case where filing a grievance should be done as soon as possible, in his view.

Cummins and Anderson agree that these conversations need to be happening more often in the various Pagan communities. The success of a religious revival can in important ways be judged based on how its elders are honored and cared for.

*  *  *
The work of journalist Terence P. Ward was made possible by the generous underwriting donation from Hecate Demeter, writer, ecofeminist, witch and Priestess of the Great Mother Earth.

(no subject)

Jun. 27th, 2017 11:26 am
ysobel: (Default)
[personal profile] ysobel
One of my dreams last night involved me talking about how some German communities -- particularly the were-shifters -- came over to America to escape persecution, and brought their traditions with them.

Traditions like Thanksgiving meal (turkey and potatoes in particular).

And all this was happening around 1066.

::eyes brain in amusement::
copperbadge: (Default)
[personal profile] copperbadge
A few days ago, Mum found out that she may have a close blood relative she didn’t know about, who was the product of an affair and put up for adoption after he was born. Details are sketchy but we worked out from his birth year that it’s possible his birth parents met at a party my mother’s parents threw. 

I only know all this because she asked me to look into him and make sure it wasn’t a scam, and while it’s not a scam it’s also fucking uncanny how similar he and I are – not just physical appearance but hobbies and personality (as much as you can get personality from a facebook and a blog). He’s ten years older than me, but otherwise we’re pretty similar. 

I emailed her like “I think this guy’s on the level, he’s just looking for a missing piece of his family” and had to stifle a strong urge to be like “Also I want to hang out with him, so be nice.” 

I hope Mum likes him, I want to be his Facebook Friend. 

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Mama Robin

Jun. 27th, 2017 08:55 am
shadowycat: (Butterfly)
[personal profile] shadowycat posting in [community profile] common_nature
 photo DSCN2264_zpsm47grdsw.jpg

A mama robin has taken up residence in a nest in a tree next to my back patio. The nest was occupied last year by a robin, too. Of course, there's no way to know if it's the same robin sitting there now as sat there last year. Regardless, I was surprised to see the nest occupied again. I didn't think robins did that sort of recycling. From what I was able to find on the subject, it's not common but does happen occasionally. Has anyone else seen this sort of reuse of old nests?

Oh, God will save her, fear you not

Jun. 27th, 2017 04:42 am
sovay: (I Claudius)
[personal profile] sovay
I enjoyed this review of a new biography of A.E. Housman, but I got to the last paragraph and disagreed so violently that I spent my shower fuming about it:

But that sweetness, verging on sentimentality, is also Housman's limitation: the lads and lasses slumbering under the grass, never growing old or sick or worrying about how to find a job. Sadness in Housman is a one-size-fits-all emotion, not one rooted in particulars. It puddles up automatically. And reading "A Shropshire Lad" you can find yourself becoming narcotized against feelings that are deeper and more complicated. That may be the real secret of the book's enduring popularity, the way it substitutes for a feeling of genuine loss the almost pleasant pain of nostalgia.

The reviewer claims earlier that "one reason 'A Shropshire Lad' has been so successful is that readers find there what they want to find," so perhaps I am merely following this well-worn tack, but I don't see how you can read Housman and miss the irony, the wryness, the sometimes bitterness and often ambiguity that never prevents the pleasure of a line that turns perfectly on itself. Some of his best poems seem to take themselves apart as they go. Some of them are hair-raising. Some of them are really funny. (It is impossible for me to take "When I was one-and-twenty" as a serious lament. In the same vein, it wasn't until tonight in the shower that I finally noticed that "Is my team ploughing" owes a cynical debt to "The Twa Corbies.") That is much more complicated than a haze of romantic angst and the vague sweet pain of lost content, especially seeing how much of Housman's language is vividly, specifically physical for all its doomed youth and fleeting time, not dreamy at all. Shoulder the sky, my lad, and drink your ale. I am not sure why the reviewer knocks Housman's Shropshire for not being "particular," either. Of course it's not actual Shropshire, where the poet himself acknowledged he never even spent much time. It's Housman's Arcadia, et ego and all. I finished the review and found myself thinking of Catullus—again, I had to have my hair full of soap before I realized why. I don't understand why anyone looks for the undiluted Housman in A Shropshire Lad any more than the Lesbia poems should be assumed to contain the authentic Catullus. Pieces of both of them, sure. But my grandmother didn't need the identity of the addressee of "Shake hands, we shall never be friends, all's over" pinned down in order to copy out the poem and save it after a college relationship broke up badly. (I thought it was hers for years.) Who cares if its second person was Moses Jackson or fictional? It spoke to a real loss. I don't think there is anything anesthetizing in that. I doubt Housman would have wanted the particulars known, anyway. I have to figure out a way to stop fuming and start being asleep.

Rec: Smoke

Jun. 27th, 2017 02:45 pm
out_there: Mycroft Holmes (SH: Prim Mycroft)
[personal profile] out_there
Sometimes, the best part of a crossover is wondering how two characters could possibly get on, and then being happily convinced that they absolutely would.


Smoke by esama
Fandoms: Kingsman: The Secret Service (2015)Sherlock (TV)
Relationships: Mycroft Holmes/Gary "Eggsy" Unwin, Mary Morstan/John Watson
Words:48420



I am terribly lazy and procrastinating sharing this simply because it didn't have a handy share button. I am very spoiled these days.
umadoshi: (Deadline Russian cover)
[personal profile] umadoshi
New DW Communities

[dreamwidth.org profile] drawesome is "a friendly community of fan-artists who enjoy drawing. We hope to inspire and motivate each other to practice and hone our drawing skills in a stress-free, supportive environment."

[dreamwidth.org profile] comicsroundtable is "a fannish community for comics discussion, reviews, and general chat."


Fannish/Geeky Things

Neat Twitter thread on Wonder Woman costuming, written by a costume designer.

"Wonder Woman Actor Says Chief Is Actually a Demi-God". [io9]

"Dungeons & Dragons Wouldn’t Be What It Is Today Without These Women".

"More Murderbot Adventures from Martha Wells". [Tor.com]


Miscellaneous

"Disney Princesses Reimagined Years Later As Queens By Daughters And Mothers". "The main idea was to portray the relationship between a true mother and daughter as the same princesses a generation apart to show the similarities, the features that are alike." (Related ~10-minute YouTube video, which I haven't watched.)

"Report Finds Diverse Movies Outperform White Ones At Every Level".

"Declawing: A new study shows we can’t look the other way".

"Host a Silent Reading Party in 7 Easy Steps". [Book Riot]

"Why Honeybees Are The Wrong Problem To Solve".

"Invention Saves Wildlife From Drowning in Swimming Pools".

"Sitka artist designs slinky dress from 20,000 salmon bones".

"How I use comic books as a learning tool in my social studies classroom". [March 2016]



On Atlas Obscura:

--"Most of the World’s Bread Clips Are Made by a Single Company".

--"Jupiter Is Even Weirder Than We Thought".

--"Laurel Dinosaur Park: This dig site outside D.C. is known for its exceptionally high density of baby dinosaur fossils and dinosaur eggs".

--"The Wartime Spies Who Used Knitting as an Espionage Tool".
ysobel: (me)
[personal profile] ysobel
Okay, so, uh. Most of you know that I have a condition called FOP -- Fibrodysplasia Ossificans Progressiva. For anyone who doesn't: it’s a really fucking rare medical condition where the body creates bone in and around muscles and tendons, progressively immobilizing the body into a human statue. It is incurable and untreatable.

This is a highly relevant video:



The 11-year-old in that video, Erin, got sick in April with basically the common cold, but it landed her in ICU. Between the severe scoliosis that FOP causes (I have way milder curvature because I was older when I started losing mobility, 10 instead of Erin’s 3, and my progression was slower) and the bone locking up her rib cage and taking up space in her chest, her airway is severely compromised. She was intubated as a last-resort measure for keeping her alive.

For the last two months, she’s been bouncing between ICU and “regular” hospital. About a week ago, her parents and doctors were discussing long term care options -- either BiPAP and hope like hell she never gets sick again, or a permanent tracheotomy. The trach procedure, complicated by the restrictions of FOP, would have her in the hospital until at least September and probably longer.

Four hours ago, she stopped breathing.

She has been successfully (re-)intubated, but... it’s bad and scary and so fucking not fair she’s a fucking *kid*, she isn't even 12 yet, she shouldn't be in the fucking *hospital* for *months*, let alone almost fucking *dying*.

(and if I’m being honest, this is fucking scaring me, not just on her behalf. My airway isn’t as bad, but this could be in my future too, and in another universe it could have been my path.)

So. Please, if you pray or send positive vibes or whatever, please send some to Erin and her family.

(She also loves postcards -- address is here -- but mainly I just want positive energy out in the universe for her.)

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darchildre: a candle in the dark.  text:  "a light in dark places". (Default)
Renfield

June 2016

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